Building evidence on the value of independent advocacy

In a four year partnership with Henry Smith Foundation we built robust evidence that independent, non-statutory advocacy for people with learning disabilities and autistic people delivers meaningful change for individuals — and measurable savings to public funds. Alongside lived-experience experts and 15 advocacy organisations, our team quantified the value of the sector and equipped it with the tools it needs to secure sustainable funding.

Published:24 June 2026

Updated:29 June 2026

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Three of the lived experience expert panel at the House of Commons launch of the 2025 report: Geoff Doncaster, Marshall and Amy Telford from Speakup.

Today 1.5 million people in the UK have a learning disability while around 700,000 adults and children are autistic.

Without independent person-led support, known as non-statutory advocacy, some of these people will risk ending up at crisis point at challenging times in their life.

Over four years, Social Finance worked in partnership with Henry Smith Foundation, Speakup Self Advocacy and 15 advocacy organisations across the UK. 

Together we have built evidence on how community-based advocacy can produce positive outcomes for people with learning disabilities and/​or autistic people, estimated savings of £12 for every £1 invested in advocacy, and considered multiple routes to financial sustainability for the sector.

Across 3 research reports, 14 community of practice sessions, a House of Commons event, and extensive engagement with policymakers, funders and lived experience leaders, we have shown how far we can go when we combine research and data with frontline expertise and relational working.

It’s been a really great experience and one that has genuinely shaped our work going forwards. This represents the first time, at least in recent years, that we’ve worked in this way: partnering with an evaluation partner, building a community of practice and trying to harness the collective voice and influence of our grant holders to shape policy and leverage further funding. This program has genuinely been trailblazing for us as an organisation and everyone here is really proud that we could have been involved with it.

Jonathan Oppé, Grants Manager, The Henry Smith Foundation

Focus on impact

There was a significant gap in knowledge, evidence and quantitative data about the independent advocacy sector. We wanted to create an actionable evidence base on the impact and effectiveness of independent advocacy to support future policy development and sustainable funding for the sector.

We began by co-developing an outcomes framework to capture data. Working with the 15 grantees and consulting with stakeholders in this space, we co-designed a simple data collection mechanism and combined this data with interviews, surveys, case studies and financial analysis to build a picture of the impact of advocacy.

We also consulted regularly with our advisory group members and convened a quarterly community of practice over the four years of the programme, using that as a way of sharing what we were learning and centring the input from those with lived experience. 

In 2025, we created a separate steering group for experts by experience, to add more voices from lived experience into our ongoing work from across the programme. We supported Speakup to convene and host quarterly sessions.

All of our outputs have been co-produced with experts by experience and include Easyread versions.

It was very interesting work, I really liked to be involved. It was brilliant to work with lots of different groups and people with lived experience as part of this project.

People gave really good opinions and everyone wants to continue to work together to help advocacy groups across the country. I really liked being able to share our experiences with people interested in Speakup and how we run lots of different projects that share peoples voice and to keep the organisation running.

Vicky, Expert by Experience, Speakup Self Advocacy

Building evidence on impact

The programme supported more than 1,667 people:

  • Those aged 30 to 39 formed the biggest group (24.1%)
  • There was an equal split of men and women
  • 89.9% were of white ethnicity, with an underrepresentation of people from Asian backgrounds

People’s outcomes improved particularly in terms of:

  • Feeling more listened to
  • having better knowledge of their rights and
  • better knowledge of local services.

The cost-benefit of advocacy

£12
Saving overall
For every £1 spent on advocacy
£7
Saving for the NHS
For every £1 spent on advocacy

Read our first report

We are grateful to Henry Smith for this investment in our work and Social Finance for the ongoing support, connection and community that they have provided throughout. This program has generally helped us grow, collaborate and make a bigger difference for the people we work with.

Nikki Williams, North Somerset People First

Building a strategy for long-term sustainability

The second phase of the programme focused on how to build long-term stability and sustainability for grantees and the wider advocacy sector. Given substantial funding cuts over recent years, owing to local authority deficits, this is a key challenge for the sector.

We focused on three key questions to explore routes to sustainability:

  1. What do advocacy organisations need the most support with? 
  2. Would it help to have a national sector body to represent all advocacy organisations?
  3. What are the potential funding opportunities for grantee organisations and other similar organisations in the sector?

We explored these questions through conducting a mapping exercise, survey, interviews, community of practice and also created and consulted a new steering group of experts by experience.

1. What do advocacy organisations need the most support with?

Together we concluded that organisations need more support in 3 areas:

  • Finding and getting funding
  • Training and helping staff learn new skills
  • Working with and learning from each other

2. Would it help to have a national sector body to represent independent advocacy organisations?

We concluded that a sector body could deliver real benefits, by:

  • Telling the government, funders and the public what advocacy is and why it matters
  • Pushing for legislation to make advocacy available in all parts of England 
  • Supporting organisations to share ideas, training and tools

However, it is important that any future sector body is founded on the principles we heard:

Founding principles of a sector body table.

Henry Smith has separately funded a scoping exercise by the National Development Team for Inclusion (NDTi) to explore this further – read their report Exploring a new membership body for advocacy.

3. What are the potential funding opportunities for independent advocacy organisations?

We recommended that organisations explore:

  • New paid partnerships with schools, the NHS, universities and disability organisations
  • Place-based funding opportunities, e.g. from NHS neighbourhood health initiative, The National Lottery Community Wealth Fund, the Community Enterprise Growth Plan or partnerships with community foundations and local businesses
  • Social Outcomes Partnerships (SOPs) in which public organisations (like central government, councils and the NHS), social investors, and community or charity groups all work together to deliver the shared outcomes. In this way, the risk of service delivery doesn’t rest on grantee organisations, and there is greater focus on improving shared outcomes

Advocating for change

As part of our involvement with the programme, we prioritised raising the profile of advocacy through engaging with government in direct briefings and by feeding into consultations, such as HM Treasury’s Spending Review. We hosted an event in the House of Commons in February 2025, which was supported by Liam Conlon MP. In parallel we have also published key findings in Big Issue and multiple blogs, been featured on BBC Woman’s Hour, and published an open letter signed by grantees and advisory group members.

Our call to action, published in our final report, is for the government to introduce new legislation to expand and increase advocacy services across England, in line with the laws already in place in Scotland and Wales.

We have estimated that it would cost approximately £45.7 million to fund at least one advocacy service in every area for five years.

Before the 2025 Social Finance Henry Smith report was published, [the Scottish Parliament] were not considering a right to independent advocacy as part of the Learning Disability, Neurodivergence and Autism bill. Since then, we’ve used the report, especially the cost-value findings, to positively influence that. The government is now considering a broad right of access to independent advocacy for all of those groups of people in Scotland.

Rhona Wilder, Deputy CEO, Scotland Independent Advocacy Alliance

What did the Henry Smith Foundation programme deliver?

  1. Sector engagement: The programme articulated the difference advocacy makes in people’s lives – distinct from statutory advocacy – and developed a clear theory of change. 
  2. Tools and data frameworks: The original work produced a data framework enabling grantees to collect data on their impact, designed to be appropriate across different forms of advocacy, including group work and one-to-one support.
  3. Measured financial benefit: The cost-benefit analysis estimated the financial value of the sector of the sector.
  4. A practical way forward: The latest report sets out funding options to help the sector survive in an extremely challenging financial landscape and provides practical tools for accessing relevant funding.
  5. National engagement and influence: An event in the House of Commons and various government briefings brought the sector’s work to greater attention and gave it the profile it deserved. The proposed sector body is an attempt to make that influence permanent and long-lasting.

House of Commons event

Looking to the future

Although the programme has finished, at Social Finance we will continue to make a case to government, policy makers and funders of the benefits of advocacy wherever and whenever we can.

We hope that the reports – in particular the proof that advocacy delivers meaningful outcomes and financial value – will be a useful tool for grantees and other organisations in this sector to leverage future funding.

NDTi are continuing the work on establishing a sector body. We have connected grantees to NDTi and linked NDTi to the Scottish sector body (SIAA), to enable peer learning and joint working on next steps.

The cost-benefit analysis remains a key reference document for building outcomes-based funding models for the sector and has been shared widely by stakeholders within and outside of this programme.

We have created a connected ecosystem of professionals, grantees, experts by experience, academics and practitioners who are committed to sustaining the collaboration informally – helping to build durable, long-term systems.

Read our reports on the programme

Get in touch to find out how we can work with you

Ankita Saxena – ankita.saxena@socialfinance.org.uk Tanyah Hameed – tanyah.hameed@socialfinance.org.uk Bhavya Mehta – bhavya.mehta@socialfinance.org.uk

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